Follow our journey from diagnosis / treatment / recovery. Share our triumphs, hopes and fears.
Wednesday, January 30, 2013
St. Pete
Tuesday, January 29, 2013
Milestones
You never really see how strong something is until you put it to the test. As a parent you are constantly worried about your child's well being but when your child is sick that worry becomes somewhat of an obsession, I have to admit that becoming 'nurse mom' has been the only way for me to handle this without being a blubbering mess. My husband and I aren't very religious people and with what is happening in our little boy's body it makes it harder to believe some days that an all powerful being could allow innocent sweet babies to get sick. Then again you have a greater appreciation the days when you see the sunbeams breaking threw the clouds. On January 1st in his ICU hospital bed we discovered that Ryan's first tooth broke threw then he very shortly after stood on his own for the first time. Before we were discharged from the hospital our fragile and meek infant had overcome a terrible infection, had more blood drawn from him than I had seen before in my life, gained weight all while teething with the worst diaper rash I have ever seen. Against all odds every single day without fail he was laughing, playing, cuddling and even flirting with the nurses. Everything was put into perspective for me. Now that we've been home I can see now more than ever how lucky we are to have the support system we have. I just want to thank all of you, every single prayer and positive energy you are sending us is much appreciated. At his oncology appointment his white blood cell count went down again to 44,000! With any luck they will contine to go down. We have an appointment tomorrow at All Children's Hospital in St. Petersburg which is where Ryan will be having his conditioning and bone marrow transplant, once we get the information about his treatment I will update everyone. Thank you so much for reading and being a part of this process with us. (Ryan's second tooth broke threw a few days ago, I added the picture for you to see)
Saturday, January 19, 2013
Hurry up and wait
Tuesday, January 15, 2013
http://marrow.org/Join/Join_Now/Join_Now.aspx
Saturday, January 12, 2013
New ThanksMas
Friday, January 11, 2013
Facebook Official
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The Good, The Bad, The Terrifying
