Saturday, January 19, 2013

Hurry up and wait

Our appointment yesterday at the Oncologist went well. I was really hoping he would tell us they found a match and they were just waiting for us to get there, all things in good time I suppose. Taking the oral chemo at home has been doing it's job keeping his white blood cell count down, it was down to 47k yesterday which is half of what it was when we were at the ER. I spoke with the bone marrow transplant coordinator at All Children's just to be sure we have alll of our bases covered. As soon as our insurance sends them authorization we will have an appointment to meet with our tansplant doctor and start building on our treatment plan. Once I get a better idea of what our medical costs will be I am going to be setting up some fundraising to help with medical bills, so stay tuned for that. We have sent off for our bone marrow donor kits which I put up in an earlier post, if you are under 44 it is free to get the kit sent but they prefer donations. Since we know that finding a donor is important to so many families were are making a team for a walk/run if anyone wants to join us on March 9th in Tampa you can join our team but we are also looking for donors for the walk as well if you want to check out the link below. I hope everyone is having a great holiday weekend and if anyone has any questions about anything feel free to email me and I'll try to post some answers up here for you.


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