The waiting game

Our visit at All Children's went well but we left a little disappointed. The 10 for 10 matched donor is CMV positive and Ryan isn't so they don't want to expose him to it. (CMV is a virus that once you've been exposed, which most of us have, it stays in your blood forever.) There is an 8 for 8 match with a DQ mismatch that is CMV negative which is looking like our better choice now. They activated two more donors to see if either of them could be a perfect match. There were also a few cord blood matches but they try not to use cord blood in case he relapses they like to use the same donor again. Since Ryan is responding well to the oral chemo and his other symptoms are in check for now they aren't in a 'rush'.  My biggest concern is that JMML can take a turn for the worst with no warning. It has taken me the last two days to even write this post, just not wanting to believe it myself. It is looking like another 4 to 6 weeks until we get admitted. We also met with the surgeon, she will be putting in a central line for Ryan to get meds and blood drawn through. Luckily he will be allowed to wear all of his normal clothes as long as there is still access to his line, which was a reliefe. He just woke up from his nap so that's my cue. Keep us in your thoughts and in the next week or so I should have more info about the fundraising efforts. Have a great week!