Day +102

We were readmitted late Thursday night early Friday morning when one of the Oncologists called to tell us that the cultures from his line being broken Wednesday morning came back positive. They have given him continuous antibiotics since coming in. He had a bone marrow aspirate this morning to confirm that he is totally donor and that he has shed his KRAS mutation which caused his monosomy 7. They are currently waiting for authorization for the medicine for the infection in his line because it is $6,000 a dose, they had to wait for it to grow to know what it was (Staph). There is a very common issue of lines getting infected especially in infant / toddlers. Sorry if my thoughts are muddled I wanted to post while the little stinker was eating his dinner. Speaking of being a stinker he has officially figured out how to take off his diaper all on his own which is another host of problems that we had totally forgotten about healthy kids doing crazy things. I will try to get on again soon to let everyone know how we are doing but Ryan is holding strong as always we have been so lucky to have such a strong soldier! 

Day + 98

Sorry for the lack of updates. I started working again on Monday and Dan is still working full time so having a spare minute isn't easy. Ryan is doing great, his counts have been holding up well. We had a minor incident yesterday with his central line but that got fixed immediately. I will try to post an update in the next few days with lots of info.

Day +88

Another eventful week for us, Ryan's EBV count is back under 250 copies but they are going to finish the four week treatment to be sure that there isn't any lingering virus. His counts have been good, his ANC was 2410 today. Lots of hours spent in the hospital the last few weeks but every second we spend is another second closer we are to having our old Ryan back better than brand new. I should be starting work on Monday the 12th and could not be more excited about it, hopefully I can regain my social skills to an adequate level quickly! We are also looking to move into an apartment around the end of the month which will be such a wonderful change for us. The Ronald McDonald House has been amazing for us but we feel like to healing process will only be complete once we can be in our own space with our own belongings. I feel like there was so much more to share with you but my brain has gone blank. Have a blessed week everyone.