Follow our journey from diagnosis / treatment / recovery. Share our triumphs, hopes and fears.
Monday, August 19, 2013
Day +102
We were readmitted late Thursday night early Friday morning when one of the Oncologists called to tell us that the cultures from his line being broken Wednesday morning came back positive. They have given him continuous antibiotics since coming in. He had a bone marrow aspirate this morning to confirm that he is totally donor and that he has shed his KRAS mutation which caused his monosomy 7. They are currently waiting for authorization for the medicine for the infection in his line because it is $6,000 a dose, they had to wait for it to grow to know what it was (Staph). There is a very common issue of lines getting infected especially in infant / toddlers. Sorry if my thoughts are muddled I wanted to post while the little stinker was eating his dinner. Speaking of being a stinker he has officially figured out how to take off his diaper all on his own which is another host of problems that we had totally forgotten about healthy kids doing crazy things. I will try to get on again soon to let everyone know how we are doing but Ryan is holding strong as always we have been so lucky to have such a strong soldier!
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