Wednesday, June 26, 2013

Day +33

Dan and I went to a job fair so Ryan got a visit from his abuelos so we could get a break together. After another day of delays Ryan's doctors have been trying everything they can think of but he is still retaining a lot of fluid (basically 15% of his body weight) in his abdomen. If his weight and abdominal girth doesn't go down by morning they will be putting in a shunt to drain the excess fluid. We also noticed the other night that he has developed a rash on his scalp / forehead which has spread a little to his face. The rash is graph vs host disease (GVHD) which is the donors cells realizing that Ryan's cells are not theirs, the school of thought is that this minor rash is a good sign which should actually mean that he is less likely to relapse. He is in amazing spirits, just a little uncomfortable. Keep up the prayers, they are working. There are just a lot of hurdles on the track to recovery from transplant.

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