Wednesday, June 26, 2013

Day +34

Ryan's had an eventful afternoon. We finally got his drain placed, ND tube put in, and bone marrow aspiration done. They removed about 100cc of the fluid during the insertion. The doctor said that the fluid they drained was clear which is a great sign. Instead of taking it all at once it will be about 100cc every 6 hours until it is back to a level they are comfortable with. We will begin tube feeding some breast milk tomorrow to try and kick start his digestive system again. Once he is having good intake of breast milk and he begins making his own platelets we will be discharged. Fingers crossed. The bone marrow aspiration will take a week for results and they have sent a sample to the specialist in California to help them do research to help find a cause / cure for JMML. Well I need to try to get some sleep now. Keep us in your thoughts!

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