Day +166

It has been entirely too long since I have posted an update. Since I last posted we have moved out of the Ronald McDonald House, YAY!!! We are almost completely settled into our own place in Clearwater and things have been great. Ryan's counts have slowly been drifting down for the last few weeks so we have been doing weekly doses of Nupagen (which helps push more healthy cells out of his marrow). There is no clear reason why his white count has been down other than the idea that he may have an infection that isn't showing up on any of his blood work or the other tests that he has taken. The marrow aspiration and blood work they have done shows that he is still 100% donor cells which is AMAZING. He has also turning into this stellar little man right in front of our eyes; walking, jabbering, and his motor skills blow my mind on a daily basis. There has been so much craziness for so long that we forget sometimes that he is still just a toddler that will do crazy toddler things like trying to plug a USB into the outlet. Overall we feel so fortunate to have such an amazing support system behind us and that now we have our own space Ryan seems to be flourishing. I have decided to become a volunteer ambassador for Be The Match which will mean that I will be helping with swab drives and helping to spread the word about marrow donation, so if you have any questions I'm your girl. Since he is finally fast asleep I think it's time for me to get to bed myself. Thanks for keeping tabs on us and I promise to try and keep everyone a little better updated.