Day +234

Yesterday was Ryan's cancerversary. We decided that we were going to let it pass without much acknowledgement, December 28th will be a day that is forever etched into my brain. Looking back on the last 365 days we have experineced the highs and the lows of the human condition but we've always found a way to make the best of it all. It has officially been over six months since Ryan's transplant and he is still 100% donor!!!!! Time seems to just disappear now a days. We have days filled with a healthy, strong, wildly independent toddler who is giving us a run for our money. On December 11th he had his Broviac (chest catheter) removed, which is a major milestone and he is loving bath time more than ever. He has also been totally weaned off of his immune suppression medicine, which has allowed other medicines to start being weaned. With any luck by his transplant anniversary we will be totally free of daily meds (he currently is still on 6 meds, twice a day) but we are taking that all one day at a time. Some days are still rough; you worry about every little bump and I find myself checking his temperature multiple times a day even when he's not feeling warm but it's slowly feeling like we're on an even keel. The holidays were good to us, it was nice to get a break and be able to visit with family. We are going to be participating in the Be The Match Walk/Run Tampa on March 8th. If anyone wants to join the team or make a donation the team page will be posted at the bottom of the blog. I almost forgot our other big news, Ryan's counts at his appointment this week are the best they have been so far! His white count was 3.1, hemoglobin 11.8, platelets were 240!!! So with his positive progress we're now officially going to appointments EVERY OTHER WEEK. This may not seem like much to anyone from the outside world but going from weekly to biweekly visits is a major step. It's way past my bedtime so I'm glad I finally took some time to update everyone, we feel so blessed to have such amazing support. Have a safe, happy, healthy 2014!

Be The Match Walk/Run Tampa (Donate or Join Team)