Wednesday, May 8, 2013

Day -1

It seems like my last post was 12 hours ago but apparently it has been more than 2 days! Everything moves so fast yet so slow, it's like a black hole. As a whole Ryan has responded very well to his treatment, even better than anticipated. My mother arrived Monday afternoon as Ryan began getting his ATG. (ATG is not chemo but it wipes out cells as well to make room for the donor.) For some silly reason I had my guard down with this medicine and it's been the only one he had a reaction to, 80% of people who take the medicine have a responses so it is very much expected. Monday night my mom stayed with him so we could sleep but he was running a fever, had chills, vomiting, rapid heart rate but once morning came he did great all day and even did well with his second dose of the ATG Tuesday. He complete his chemo Tuesday early afternoon which is oddly a major weight off of my shoulders, don't get me wrong the next six months of recouperating his little body will be the hardest of my life but knowing that we are over this bridge reminds me that we are still moving forward no matter what the pace. It surprised me that he did very well with all of the chemo treatments themselves and has been feeding himself table food for lunch everyday. The nurses love him but honestly I don't know how you couldn't. He is full of what I like to call 'piss and vinegar' and has been keeping very active with little pockets of great cuddle time. I feel like I may be missing some things but he still has his hair, has a very light diaper rash, and if you came in the room not knowing what we were here for you wouldn't believe by sight that he was sick at all. We have been blessed that so many people care about us and I'm sure that things will continue to be amazing. 

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