Day - 5

As our day comes to a close we're starting to see the side effects of the chemo. Today had some ups and downs; Ryan is still slowly gaining weight but he needed a platelet infusion today because his red blood cell counts were low. His white blood cell count cut in half within 24 hours which is a good sign that the treatment is doing it's job, one of the hallmarks of the JMML is the body making an over abundance of white cells which actually drowns out the healthy cells from keeping the bad stuff out. (Think of it like a bouncer trying to make their way into a mosh pit to grab the guy causing problems.) Luckily we had a good 30 minutes of our happy little man playing around earlier. They have him on a diuretic so he doesn't retain too much water, which is a common side effect of his next set of chemo. His last dose of Busulfan will be 3am which will be followed by Cytoxan around 10am. Sorry I haven't been too good about updating, time seems to melt together when you spend your day in one room. I've been fortunate enough to have my wonderful husband here to allow me some nap time and alternate sleeping at the Ronald McDonald House. I'm pretty sure I've been getting our money's worth out of Hulu and Netflix, by the time we are out of here I will have seen every episode of every show that has eluded me over the last few years. As we are pushing through the next few days of chemo and you continue your prayers please keep in your thoughts the cancer cells leaving to make room for the healthy, fresh donor cells. Watching the things that I've seen the last few days it's hard to know how you truly feel but I have confidence in the hospital staff to put our Humpty Dumpty back together again. Bless you all and good night!