Time goes by much faster in here than you would expect. Day +2 was a rough day for Ryan, he started presenting with signs of mucositis in his throat. Mucositis is the painful inflammation and ulceration of the mucous membranes lining the digestive tract, usually as an adverse effect of chemotherapy treatment for cancer. The nurse explained that it feels similar to having a really sore throat but they decided to place a feeding tube during the early stages while he would still tolerate it well. Luckily he has still been drinking bottles by mouth and eating some table foods which is apparently very rare at this stage. The advantage to the feeding tube is that we can give his oral medications without upsetting him and he is still getting breast milk which (I think) has kept him a step ahead. They also started a small continuous dose of morphine to keep him comfortable and get through the next few weeks. Everyone that comes in to see him always seems shocked at how well he is doing, at this stage in the game we were expecting a much rougher time for him but he seems to be chugging along. Day +3 was Mother's Day and it was the best day I could have asked for. My in laws came to visit and see Ryan while my mother and I went to have lunch and get our nails done then Dan and I went to see Iron Man 3. Ryan had a great day and was so happy to have a day surrounded by grandparents. Today has been another great day, we even had a visitor! Vinny Lecavalier from the Tampa Bay Lightening has a foundation which sponsors the oncology department at the hospital and he occasionally visits the patients so Ryan got an autograph, shirt and a photograph with him. He even said Honestly if he didn't have the tube you would have no idea looking at him that he finished treatment and he was as sick as he is. It's about time to see if he wants something to eat, thank you for reading and bless you for all of the thoughts!
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