So today was the day, the one we had been waiting to hit. He slept so well overnight and only needed a little extra does of Morphine to make it through then morning came. Once we woke up to get his morning weigh in and diaper change it was clear that the mucositis in his throat was acting up. Because of amount of pain that it causes when he swallows he no longer has any interest in other foods or even drinking bottles. Unfortunately it also causes his throat to create a mucus-y film that makes it difficult for him to eat even if he wanted to so he ended up spending his morning getting himself worked up until he would vomit up the sticky stuff. We have been dreading the day that this would all begin to happen, I think he handled it the best we could but it is so rough to see him suffer and not be able to do anything other than kiss / hold him to make him as comfortable as possibly. While we was having one of his purging moments he spit up his NG tube so they had to remove it and because of the progression of the sores they don't want to replace it, which I completely agree with. So this evening he was started on TPN which is nourishing him by IV until the mucositis clears up enough for him to resume eating and drinking. It will most likely be a pretty rough weekend but we are looking at the horizon knowing that the finish line is somewhere up ahead and if we keep pushing it we will get there eventually. I believe everyone should have gotten their shirts by now, I hope you like them all. I've been wearing mine around and the nurses all want some now so I'm going to see about doing another run since they are still very popular! Thank you again from the bottom of my heart for all of the kind words and Happy Mother's Day to all of the ladies. It's been one hell of a year and by the end of it we will have our little survivor back and getting on to the next chapter.
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